The little girl in the picture above is Allison. She's the daughter of one of my dearest friends (and she is also one of Grace and Emma's dearest friends as well) and she is easily one of the sweetest souls walking the Earth. Almost two-and-a-half years ago Allison was diagnosed with Kawaski Disease. It was such a super scary time as she was so very, very sick. Our beloved pediatrician is also their pediatrician and Dr. Rugo would not rest until the mystery of what was making Allison so sick was figured out. Suspecting KD, Dr. Rugo sent Allison for an echo with a cardiologist out of UMass Worcester. As soon as the doctor doing the echo saw the aneurysms Allison was sent straight to Boston Children's Hospital. Fast forward two years to her first Spartan Kids Race this summer and you'd never guess that she had been so very sick just a couple of years before!
It is truly an honor and a privilege to be connected to this incredible family! The Shackelford/Rezac clan has never ceased to amaze us, and so it should come as no surprise that Allison's dad and her uncle have been working together to come up with a medical device to help improve the lives of kids with KD and aneurysms.
Please watch this video and then, if you are able, make a donation to help get this device one step closer to reality. You can also like the Pegasus Therapeutics Facebook page, and share this blogpost to help get the word out about the work that Aubry and Dave are doing. Every little bit counts and together we can help make a difference in the lives of kids with KD and aneurysms. xo
The truly are an amazing family unit. I'm from the Houston area and Allie's older sister was my daughter's very first friend. I so hope they are able to raise enough to get this thing going.
ReplyDeleteHi Heather, Thanks for stopping by and for your lovely comment! I remember hearing about your family from Jean! I hope that all is well in Texas and perhaps one day our paths will cross! I hope they can raise enough money, too! xo
DeleteThank you for sharing, Shel. As the mother of a child who had serious health issues, I know how important it is for the help and support of others. xx
ReplyDeleteYou are very welcome, Patricia! I had a feeling this post would resonate with you! (((hugs))) xo
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